The Waiting Game

I've been anxious to update with baby news. My repeat test showed that my hcg levels were more than doubling and my progesterone also looked good.

*sigh*

What a relief!

Since then, I've been waiting on pins and needles (literally and figuratively), comparing myself to all the pregnancy "norms". Doing some freaking out here and there if I don't have any symptoms, but then reassured by friends and their experiences. I know everyone's pregnancy is different, but I'd like to be in the "normal" category.

Our first ultrasound is on Thursday and it can't come soon enough. I want more assurance that there really is a baby growing in there...this time with a heartbeat!

According to Dr. K, I could have gone in last week and had my 1st ultrasound to see the heart beat. Even though I'm pretty certain that I am between 6 and 7 weeks, I didn't want to get an ultrasound prematurely and not see a heartbeat. That would send me spiraling out of control on the "Oh No!" and "What If" train.

4 days ago I started to feel the onset of morning sickness. Yahoo! Bleh! (I was getting worried because many women start having it a week or two earlier). I haven't actually tossed my cookies yet, but it's gradually getting worse. It doesn't seem to have any rhyme or reason to it. It can be 3am, 10am, 3pm or just before bed when I feel it. My least favorite is waking up at 3am sick to my stomach. Lack of sleep on top of feeling gross! Saltines seem to the best solution so far, but I have many other recommendations to try out still.

Ryan downloaded a couple of hypnotherapy Mp3's and they seem to work...probably because I fall asleep half way through them. I don't know how that is going to help at work ...it's not like I can lie down and listen to a soothing voice for 45 minutes. :/

Tonight we are trying out a class called, "Managing Discomforts Through Hypnosis." Supposedly it will teach us life long skills to manage stress, pain, nausea, low energy and insomnia. I hope it works! Judging by the successes I've had with alternative medicine, it should!

I recently traded services with my friend Jackie. She is getting married in a few short days and I sewed a few leggings for her brides maids. In return, she has offered to do some additional hypnotherapy with me! She wants me to think about what I want to focus on/address during our session. So many choices! Pregnancy related? Stress related? General well-being? Meditation/affirmations? Anxiety disorder related?

I guess I'll let you in on a little secret that is still taboo to talk about in this day and age. I have an anxiety/depressive disorder and take Zoloft to help me cope with social anxiety, my need to be perfect, and make perfect decisions at all times. Since I found out I am pregnant I've stopped taking Zoloft right away. Studies show that it can cause pulmonary hypertension if taken during the 3rd trimester. I don't want to risk anything by waiting until the 3rd trimester to stop taking Zoloft. The anxiety/depression department has been fairly well behaved since I've stopped taking my meds. I've had a few meltdowns and lash-outs, but it could also be hormonal. I'm learning that I tend to lash out when I have trouble communicating my thoughts and emotions.

Maybe I should focus on peaceful communication in my session with Jackie. I'm sure Ryan would appreciate it. What do you think I should focus on?

Other than that I've been thirsty, exhausted and out of breath. All of which I think are normal. Right?

Things I look forward to:
1st ultrasound
Tender boobies (more assurance that things are going in the right direction)

Things I don't look forward to:
Cooking and washing dishes (Oh the smell!)

Honestly smells haven't been that bad, but enough to keep me away from cooking.

Fun and Games

Rainbow Bridge

Ryan and I have been doing a fair amount of sneaking out of town this summer. A few weeks ago, we went on the sly to a mini Darton Family reunion in Lake Powell, followed by a mini Merkley Family reunion in Durango, CO. It was 11 days of awesome.

Sitting in a stall at Denny's the morning we arrived at Lake Powell, I was amazed I had managed to do it again. My body was producing clear and stretchy fertility mucous. The lighting wasn't the greatest, but I was pretty certain it was the real deal.

"Ryan, this might be hard to do without everyone knowing what is going on, but we need to make time for some baby making while we are here."

"Really? It's milky?...Okay. Can we wait until tonight after everyone goes to bed?"

"No! It's clear! I don't want to wait until tonight. We need to get started ASAP! I want to give this every opportunity we can to actually happen."

With only a thin piece of fabric separating us from the rest of his family we starting the process of making a baby. ;) We were definitely quiet...maybe too quiet. We tried to be secretive, but it was obvious what we were up to.

"Boy, it sure took you two a long time to change into your swimsuits." snicker, snicker

I tried to hide what was going on, but I gave up after 1 day. It was so much easier to let everyone in on what we were up to and have their support. Besides, I'm a terrible liar. Especially when my mother-in-law and the rest of the family asked very direct questions.

Stephany

Ryan catching some air

Jo, Kate, and MJ with dresses I made for the Darton girls (Raine was sleeping and Fisher doesn't wear dresses). I can't believe I didn't take a family photo of everyone! Tsk, tsk.

We spent the next 11 days water skiing, wake boarding, swimming, lounging, biking, hiking, fishing, playing, riding the train, and gorging on food with both of our families. Full of nieces and nephews and stress free.

On the way to Silverton, CO

Richard, Marshawn, Mom, Dan, Annecy, Ryan, me, Jonas, and John. Where was Erin and Dave? Sophie, Jed and Truman were in school. :(

2 weeks after the clear, stretchy mucous I expected to have my period. Nothing. Was. Happening.

AARRGGHH!

On our way to go road biking I had a melt down.

WHAT IS WRONG WITH ME? WHY CAN'T MY BODY BE NORMAL? PERHAPS THE TINIEST BIT PREDICTABLE? I JUST WANT A BABY!

I was bawling. Seriously. I got so excited about that clear mucous. I thought that maybe a pattern was starting so we could actually make some progress on this baby business. I was wrong. My body is such a jerk.

"Oh....haha...this is going to be so funny...here have a cycle. But only one! heehee. You haven't had a natural one in 12 years...isn't that funny? Nope, not this month! What? You don't like playing keep away? hehehe. Just because I gave you one in July, doesn't mean you can have one in August too. Hahahaha! You should have seen your face when you had that fertility mucous! HILARIOUS! Even better? When you didn't start your period. You know, you're not very cute when you cry. hahaha!"

Bitch.

I'm grateful for this bitch, because on Thursday morning in resignation I took a pregnancy test, fully expecting negative results and positive confirmation that my body is truly cruel, but instead it came back positive. And the next one. And the next one. And the next one. And the next one. Yep. I peed on 5 sticks in disbelief. All of them came back positive. To be fair I didn't trust the first 3 after I noticed a misspelled word on the packaging. Later that morning I had blood work to confirm that I was indeed pregnant.

I AM PREGNANT!!!!

Although I am grateful, my body can still be a bitch. That very night I started spotting and had some mild cramping.

I flipped out.

NO NO NO NO NO NO! PLEASE NO!

Sobbing, I called my Fertility MD, Naturopathic MD, acupuncturist, mom, sister, brother, best friend. Dr. K and Dr. W agreed that taking progesterone to help keep the baby was a good idea even though my blood work earlier that day "looked good", but it wouldn't ultimately prevent a miscarriage if that is what my body wanted to do. I had the opportunity to go in yesterday to have more labs done, but I decided not to send my mind into a tailspin.

Last time my numbers weren't increasing how Dr. K wanted them to and said the pregnancy was abnormal. Following his advice, the pregnancy was terminated. Since then, I have tortured myself about that decision after finding a website filled with stories about women in similar or IDENTICAL situations that decided to trust their intuition and bodies and then went on to have healthy babies. I don't want to go through that again.

We said a heartfelt prayer.

PEACE.

I don't feel worried. I am taking the progesterone. The bleeding and cramping has stopped. On Monday I'll have more labs drawn to make sure my hormone levels are increasing properly. If it turns out for the worst, the silver lining is that I was able to do this without heavy duty hormones. Hopefully I will have success again. I don't look forward to another game of keep away, but something is definitely working!

Praise the Lord and the Chinese!

Keep Your Hands & Feet Inside The Ride at All Times

I'm taking a break from the fertility roller coaster for a little while. In the meantime I've been trying to process everything that happened and work on getting to a better place mentally, spiritually and physically.

I found a website that I wish I hadn't found...or had found before my miscarriage. I've made myself sick over it, questioning my decisions, my doctor's decisions, blaming myself, blaming him, wondering if Dr. K cared enough or if I was just one of many. Was it a misdiagnosed miscarriage? Did I miscarry a potentially viable embryo? I've read through enough stories to make myself crazy. There are several that are nearly identical to my experience and ended in a healthy baby. I'm convinced I was too hasty, and it was too early to make a such decision. I am angry with myself that I didn't research more before trusting my doctor so completely. I make excuses that it is because of my profession...that I am accustomed to trusting doctor's in their field of expertise...that as a nurse, I am used to following doctor's orders. But in reality I CONSTANTLY question doctor's decisions, making sure they are necessary and in the best interest of my patients.

WHAT ABOUT ME?

Why didn't I make sure things were in MY best interest? I am the patient!

Ryan tries to comfort me, and reminds me that WE made decisions based on the knowledge and information that we had at the time...that I can't dwell on this because we don't know and we can't change it now.

BUT I WANT TO CHANGE IT! I'VE CHANGED MY MIND! I WANT TO MISCARRY NATURALLY! I DON'T CARE IF IT IS MORE TRAUMATIZING OR PAINFUL...AT LEAST I WILL KNOW IT WAS TRULY ABNORMAL!

I'm devastated. So many new 'what ifs', so much new heart ache. I can't help from thinking about where I would be in pregnancy right now.

People try to offer hope after hearing about the miscarriage, "Well, at least you know you can get pregnant now right?"

Maybe so, but will I be able to stay pregnant? It took 4 IUI tries with multiple eggs each time to achieve pregnancy...an assumed (I made an ass out of myself) abnormal pregnancy...will it take that long again? Will we face another miscarriage? Insurance will only cover 2 more rounds. After that, it is up to us and money doesn't grow on trees.

I'm reevaluating everything. I plan on interviewing other fertility specialists. Sorry, Dr. K, but I need to know what others would have done in the same situation. I need to have some questions answered. I need to see what my options are. Maybe find someone that has a more comprehensive approach...a more holistic approach. Maybe find someone that I feel connects with me better and is interested in working in conjunction with Eastern Medicine practices.

Usually they wait for you to have 3 miscarriages before they do more rigorous testing, but I don't want to wait that long. I want to find out now, in case we run out of coverage before I get pregnant again. I want to make the next round as successful as possible. If that means getting these tests done, so be it.

I've been going the the Chiropractor and Acupuncturist for the past few weeks. I have a theory that things will work better if my body is feeling better. I'm finally addressing my chronic headaches/migraines (I am currently getting them every other day), back/neck pain, my teeth clenching, and getting my Qi flowing properly. I think I have a stress/pain/pain/stress cycle that is affecting my fertility by releasing stress hormones and inflammatory agents. Maybe by reducing these, it will improve my odds.

My Acupuncturist says I won't start seeing results for 9 months. I don't know if I can wait that long. I might get back on the fertility roller coaster. She is working on getting me to have a cycle before she addresses the PCOS and does the fertility treatments. Treat the underlying problem, not just the symptoms. I agree with this approach. You might say it is a grassroots way of doing things. She also put me on a herbal formula that includes Flying Squirrel feces. Yep you read that right...Flying Squirrel feces. Call me poo-breath if you want.

My back pain is much better, but we are still working on the headaches. My dentist told me to get a mouth guard for sleeping. Hopefully it will help with the clenching.

I've also been in contact with my childhood friend Melissa Christensen, who happens to be a Naturopathic Doctor specializing in fertility, pediatrics and women's health. She has offered to help manage my care in conjunction with my current specialists. SCORE!

Ryan is convinced that we won't even need western medicine fertility treatments to get pregnant. He is confident that Eastern medicine will do the trick. If anything it will only help.

Strike Three

*Sigh*

I've had a hard time getting up the energy to blog about this again, but I guess I want to document my journey. Maybe one day in the future (hopefully with a baby in my arms), I'll be able to look back and say, "Whew, I'm sure glad that's over. It was worth it, but man that was a bumpy ride."

Here's the skinny....

Since I responded almost too well to 75 IU of Follistim last round, Dr. K. had me start with 50 IU this round. 3 days and an ultrasound later, I had produced a lot of little follicles, but none of them were nearly the size they should have been. Dr. K. bumped the dose up to 75 IU for 2 days with an ultrasound to follow. *grumble* Now the ultrasound showed a lot of medium sized follicles, but none had "taken the lead" or were big enough to ovulate yet. So Dr. K. had me do 2 more days with 75 IU with another ultrasound to follow.

The next ultrasound showed I had a lot of large-ish follicles, but none were quite ready to ovulate again! Dr. K. decreased my Follistim dose to 37.5 IU for two days with an ultrasound to follow in hopes that a few of the follicles would finally be ready to ovulate.

By this time I could really feel it. By it I mean it was painful. It felt like someone had sucker punched me in the ovaries. Essentially they were like expanding balloons, stretching tighter and tighter. It hurt to run, it hurt to stretch, I was bloated, had diarrhea, nausea and the beginnings of a nasty headache that would last a week. Remember OHSS? I pretty much had mild/moderate symptoms of OHSS and it sucked big time.

Back at Dr. K's office I had not one, two, three, even four follicles taking the lead, I had a lot of huge-ish follicles that could potentially ovulate. I think he counted 4 follicles that would definitely ovulate and 6 more that might ovulate. Dr. K. filled us in on the potential risks (multiples) with proceeding with the IUI and gave us the option of abstaining this round. It felt like such a waste to sit this one out. A waste of money, time, and discomfort if we didn't do it. I didn't want my suffering to have been for nothing...I wanted to go for it. Theoretically we had 3-4 eggs last time that didn't "take"...maybe we would be increasing our odds.


To spare me some of the rage, Dr. K. cut my progesterone dose in half for the first five days. Ryan and I were sneaky and took a short trip to Durango to visit my sister and her family. I totally expected to feel a little bit of rage while I was there and even worried I might get short tempered with my niece and nephews, but I didn't.

Sadly, my progesterone levels after 5 days weren't high enough so Dr. K. bumped me back up to 200mg Progesterone twice a day. I expected to Hulk out on the higher dose, but I didn't. I actually felt pretty good, normal even. My ovaries weren't hurting any more, I wasn't bloated or nauseous, and my headache was gone. Finally!

As you can tell from the picture above, I took the pregnancy test on 2/22 and it was negative. WTF is an understatement. Are my eggs bad? Is my lining healthy? What is going on? Do I have a hostile uterus? I want some answers. We had felt really good about this round since I had so many follicles and didn't Hulk out. It was really hard seeing the result come back negative for a third time.

Tomorrow I am trying acupuncture for infertility. There are currently several research studies going on that have shown some favorable results. Maybe when East meets West I'll get lucky.

Rinse, Repeat

Wars Waged and Battles Fought

I've been thinking about this post for a long time, and how I was going start. I'm having a hard time putting my emotions into words, and perhaps it is because it is something close to my heart.

I want a baby. I'm not talking about your usual want, like when you want a doughnut or a new pair of shoes. Sometimes I think I even NEED those things, because I CRAVE them. No, this want is deeper, a more visceral want. It's something that I ache for, my heart aches for.

My nephew Jonas Hughes

We "trying" to get pregnant, but before you start congratulating us and wishing us the best (I still need your well wishes though), this is not the usual trying. It's not the kind where you toss out your birth control and start paying attention to ovulation calendars, basal temperatures etc. Oh how I wish it were that easy!! We are "trying" with medical interventions.

Back Story:
I remember walking with my friend Sarah H. when we were 9-ish discussing what our future husbands would look like, what qualities they would have, what type of profession they would have, how old we wanted to be when we got married, how many children we wanted and the ratio of girls and boys. I told her that I wouldn't be able to have children. She looked at me and said, "How do you know?" I replied, "I just have a feeling." I wanted 6 (3 or 4 is plenty), I think she wanted 4. I really did have that feeling and it worried me. It still worries me. Was it pessimism, self fulfilling prophecy or premonition? Could I really have been that in tune at that age?

I was relieved when I finally came of age and "became a woman" at nearly 16 (16 or later, as a rule of thumb indicates abnormalities). All of my friends had come of age years earlier. I was a late bloomer by medical standards. Even after I had my first menses, things didn't go smoothly. No monthly visits for me. They were all over the place. Every so often I would have sharp pains in my abdomen. Although I didn't know what it was at the time, I could tell it had something to do with my ovaries. It felt like they were in a vice and someone was jabbing them with a large sharp needle. The pain never lasted too long so I didn't worry much about it. At 18, my general physician suggested I start birth control in hopes to kick start my body onto a regular cycle. I stayed on it for a few years and at 21 decided to see if my body had finally gotten a clue on how to do it properly.

A year went by...nothing. Not a drop.

Friends tell me that I am lucky. No cramps, bloating, I'm saving money, etc., but for me it meant I wasn't normal. I want to be normal...at least in this area.

I went to see a recommended OB/GYN. He drew some blood, did an exam and said, "Well, I think you have Polycystic Ovary Syndrome, but I can't be certain because your hormone levels are within normal limits and you don't fit the typical profile of a woman with PCOS." Nervously I asked him if I was infertile. He said, "We won't be able to tell that until you start trying to get pregnant, but I can tell you that you are going to need help. The pain you are having is probably ovarian cysts that have ruptured. In the meantime, you need to keep your uterus healthy by shedding your lining every month with birth control. It will also help prevent additional cysts from growing." A trip to the ER (to rule out appendicitis) confirmed PCOS.

Currently:

Since we've been married we haven't been preventing, and more recently we have been actively "trying". In March I saw an Endocrinologist who put me on 500mg Metformin (diabetic medication that can also stimulate ovualtion in women PCOS) every day in hopes that it would stimulate my body to start ovulating. To my excitement, I started to have breast tenderness. Was Metformin the answer? After 3 months, still no period and the tenderness went away and hasn't been back. In May, she bumped it up to 1,000mg. In June, she bumped the dose to 1,500mg and she gave me a referral for a Fertility Specialist. In July, I was taking 2,000mg Metformin but even that wasn't working. It was time to take it to the next level. In August my Fertility Specialist added 50mg Clomid every day to the mix hoping to stimulate an egg follicle to grow. For a review on how complex ovulation really is click here. After 8 days and the start of intense hot flashes we did an ultrasound to see if anything was happening...nothing. My doctor increased my dose to 100mg every day plus the Metformin. 8 more days later and another ultrasound...follicles!!! They weren't /mature or big enough yet though. They needed to double in size. We came back 3 days later for another ultrasound...no growth. He increased the dose to 150mg Clomid and 2,000mg Metformin. 8 days later and after experiencing blurred vision and tracers in addition to the horrible hot flashes, the ultrasound showed 2 follicles that had "taken the lead" and were the appropriate size and ready to ovulate. SUCCESS!!!

Hold you're horses.

That is just the beginning. Now I had the follicles, but I still needed to release the egg, have it fertilized, and hope that it it implants. To ensure that the follicles launch the eggs (I might have released 2) I had to give myself a shot. We wanted to increase our chances of success, so 36 hours later Ryan gave a sperm sample *cough* that was washed, spun down and concentrated. An hour after the sample as given, I was artificially inseminated. We had homework too. For the next 3 days we needed to "get busy".

Now we wait.

Well, I do more than just wait. I still have to take the Metformin and Progesterone in addition to prenatal vitamins. Unfortunately, higher the doses of Clomid mean the thinner your uterine lining becomes. Eggs want thick luxurious lining to nestle down into. Progesterone helps build this lining. I was on near max dose of Clomid and because of my visual side effects, I won't be able to try it again. Vision is too closely connected to the brain and they don't want to take any chances. Good thing those 2 follicles were ready to go, otherwise we'd be back to square one.

After 2 weeks of waiting I take a pregnancy test to see if it actually worked.

I'm scared. What if it doesn't work? I've tried to keep myself emotionally distant so if it doesn't work I won't be completely heartbroken. I've always planned on adopting , so I have a back up plan, but in my heart of hearts I REALLY want this to happen. I want to feel my belly grow, and feel a little person moving inside. The process is so tedious and technically structured when you can't conceive naturally. Because of this, I've realized how special and miraculous having a baby truly is! There are SO many things that need to happen just to get pregnant let alone produce a healthy child (those are a whole new set of fears). If it doesn't work, I can't promise I won't cry.

There is so much frustration with not being able to conceive. I know pregnancy can be difficult, uncomfortable, and probably down right miserable, but sometimes it's hard to listen to friends and co-workers complain about their hardships when I would give anything for the same opportunity. Sometimes I want to take them by the shoulders and shake them and say, "Be grateful damn it!" I hate to think that in my life time I've only had a handful of opportunities to conceive naturally, opportunities that I may never have again without intervention. Most women have the opportunity every month and often feel that it is a curse. I hope my lady friends pause and give thanks for the ability you have been given to be able to create life. I have to fight for that gift.

The entire process is very expensive. My insurance covers some, but not all of it. We haven't received any bills yet, and I'm a little nervous to see how much this endeavor will cost us. If it works, it was well worth it. If it doesn't we are looking at even more expensive options.

Sometimes it feels like I'm wishing for this:

When I've been given this:

I'd be happy to settle for something like this:

So today is the day. It's been 2 weeks.

I could use a prayer, positive energy, luck or a combination of all three.